{"formats":[{"name":"JSON","format":"json","url":"\/downloads\/2025\/code-json\/59.1-595.json"},{"name":"Plain Text","format":"text","url":"\/downloads\/2025\/code-text\/59.1-595.txt"},{"name":"XML","format":"xml","url":"\/downloads\/2025\/code-xml\/59.1-595.xml"},{"name":"HTML","format":"html","url":"\/downloads\/2025\/code-html\/59.1-595.html"}],"law_id":79801,"edition_id":1,"section_id":79801,"structure_id":14495,"section_number":"59.1-595","catch_line":"Information to be made available to consumers","history":"2023, c. 526.","full_text":"A\n\nEvery direct-to-consumer genetic testing company shall provide to consumers:1\n\nA summary of the company’s (i) policies and procedures related to the collection, use, maintenance, retention, disclosure, transfer, deletion, and security of and access to genetic data and (ii) privacy practices;2\n\nInformation regarding the requirement for express consent for the collection, use, and disclosure of genetic data and the process for revoking express consent pursuant to § 59.1-596;3\n\nNotice that a consumer’s deidentified genetic or phenotypic data may be shared with or disclosed to third parties for research purposes in accordance with 45 C.F.R. Part 46; and4\n\nInformation about the process by which a consumer may file a complaint alleging a violation of this chapter.B\n\nInformation required to be made available pursuant to subsection A shall be written in plain language and shall be provided to consumers together with any genetic testing product provided to consumers. Such information shall also be included on any website maintained by the direct-to-consumer genetic testing company in a manner that is easily accessible by the public.","order_by":null,"text":{"0":{"id":285893,"text":"Every direct-to-consumer genetic testing company shall provide to consumers:","type":"section","prefixes":["A"],"prefix":"A","entire_prefix":"A","prefix_anchor":"A","level":1,"next_prefix":"A1"},"1":{"id":285894,"text":"A summary of the company’s (i) policies and procedures related to the collection, use, maintenance, retention, disclosure, transfer, deletion, and security of and access to genetic data and (ii) privacy practices;","type":"section","prefixes":["A","1"],"prefix":"1","entire_prefix":"A1","prefix_anchor":"A1","level":2,"prior_prefix":"A","next_prefix":"A2"},"2":{"id":285895,"text":"Information regarding the requirement for express consent for the collection, use, and disclosure of genetic data and the process for revoking express consent pursuant to § 59.1-596;","type":"section","prefixes":["A","2"],"prefix":"2","entire_prefix":"A2","prefix_anchor":"A2","level":2,"prior_prefix":"A1","next_prefix":"A3"},"3":{"id":285896,"text":"Notice that a consumer’s deidentified genetic or phenotypic data may be shared with or disclosed to third parties for research purposes in accordance with 45 C.F.R. Part 46; and","type":"section","prefixes":["A","3"],"prefix":"3","entire_prefix":"A3","prefix_anchor":"A3","level":2,"prior_prefix":"A2","next_prefix":"A4"},"4":{"id":285897,"text":"Information about the process by which a consumer may file a complaint alleging a violation of this chapter.","type":"section","prefixes":["A","4"],"prefix":"4","entire_prefix":"A4","prefix_anchor":"A4","level":2,"prior_prefix":"A3","next_prefix":"B"},"5":{"id":285898,"text":"Information required to be made available pursuant to subsection A shall be written in plain language and shall be provided to consumers together with any genetic testing product provided to consumers. Such information shall also be included on any website maintained by the direct-to-consumer genetic testing company in a manner that is easily accessible by the public.","type":"section","prefixes":["B"],"prefix":"B","entire_prefix":"B","prefix_anchor":"B","level":1,"prior_prefix":"A4"}},"ancestry":[{"id":14495,"edition_id":1,"name":"Genetic Data Privacy","identifier":"56","label":"chapter","depth":2,"order_by":1,"parent_id":12809,"metadata":{},"date_created":"2026-06-26 03:48:21","date_modified":"2026-06-26 03:48:21","permalink":{"id":262825,"object_type":"structure","relational_id":14495,"identifier":"56","token":"59.1\/56","url":"\/59.1\/56\/","edition_id":1,"permalink":0,"preferred":1}},{"id":12809,"edition_id":1,"name":"Trade and Commerce","identifier":"59.1","label":"title","depth":1,"order_by":1,"parent_id":null,"metadata":{},"date_created":"2026-06-26 03:43:54","date_modified":"2026-06-26 03:43:54","permalink":{"id":259521,"object_type":"structure","relational_id":12809,"identifier":"59.1","token":"59.1","url":"\/59.1\/","edition_id":1,"permalink":0,"preferred":1}}],"structure_contents":[{"id":63239,"structure_id":14495,"section_number":"59.1-593","catch_line":"Definitions","url":"\/59.1-593\/","token":"59.1\/56\/59.1-593","metadata":false},{"id":58499,"structure_id":14495,"section_number":"59.1-594","catch_line":"Exclusions","url":"\/59.1-594\/","token":"59.1\/56\/59.1-594","metadata":false},{"id":79801,"structure_id":14495,"section_number":"59.1-595","catch_line":"Information to be made available to consumers","url":"\/59.1-595\/","token":"59.1\/56\/59.1-595","metadata":false},{"id":71838,"structure_id":14495,"section_number":"59.1-596","catch_line":"Express consent required; revocation of express consent","url":"\/59.1-596\/","token":"59.1\/56\/59.1-596","metadata":false},{"id":56619,"structure_id":14495,"section_number":"59.1-597","catch_line":"Other requirements applicable to direct-to-consumer genetic testing companies","url":"\/59.1-597\/","token":"59.1\/56\/59.1-597","metadata":false},{"id":78669,"structure_id":14495,"section_number":"59.1-598","catch_line":"Contracts with service providers","url":"\/59.1-598\/","token":"59.1\/56\/59.1-598","metadata":false},{"id":56035,"structure_id":14495,"section_number":"59.1-599","catch_line":"Certain disclosures of genetic data prohibited","url":"\/59.1-599\/","token":"59.1\/56\/59.1-599","metadata":false},{"id":55900,"structure_id":14495,"section_number":"59.1-600","catch_line":"Discrimination prohibited","url":"\/59.1-600\/","token":"59.1\/56\/59.1-600","metadata":false},{"id":61312,"structure_id":14495,"section_number":"59.1-601","catch_line":"Enforcement; civil penalty","url":"\/59.1-601\/","token":"59.1\/56\/59.1-601","metadata":false},{"id":68507,"structure_id":14495,"section_number":"59.1-602","catch_line":"Limitations","url":"\/59.1-602\/","token":"59.1\/56\/59.1-602","metadata":false}],"previous_section":{"id":58499,"structure_id":14495,"section_number":"59.1-594","catch_line":"Exclusions","url":"\/59.1-594\/","token":"59.1\/56\/59.1-594","metadata":false},"next_section":{"id":71838,"structure_id":14495,"section_number":"59.1-596","catch_line":"Express consent required; revocation of express consent","url":"\/59.1-596\/","token":"59.1\/56\/59.1-596","metadata":false},"metadata":false,"official_url":"https:\/\/law.lis.virginia.gov\/vacode\/59.1-595\/","history_text":"

This law was first created in 2023. The record of its establishment is cataloged in chapter 526<\/a> of that year\u2019s edition of \u201cActs of Assembly,\u201d the annual state publication listing all changes made to the Code of Virginia in that year.<\/p>","references":false,"refers_to":[{"id":71838,"section_number":"59.1-596","catch_line":"Express consent required; revocation of express consent","order_by":null,"url":"\/59.1-596\/"}],"permalink":{"id":262835,"object_type":"law","relational_id":79801,"identifier":"59.1-595","token":"59.1\/56\/59.1-595","url":"\/59.1-595\/","edition_id":1,"permalink":0,"preferred":1},"url":"\/59.1-595\/","token":"59.1\/56\/59.1-595","dublin_core":{"Title":"Information to be made available to consumers","Type":"Text","Format":"text\/html","Identifier":"\u00a7 59.1-595","Relation":"Code of Virginia"},"html":"\n\t\t\t\t\t\t

A.<\/span> Every direct-to-consumer<\/span> genetic testing company<\/span> shall provide to consumers<\/span>: <\/i><\/a><\/p><\/section>\n\t\t\t\t\t\t

1.<\/span> A summary of the company’s (i) policies and procedures related to the collection, use, maintenance, retention, disclosure, transfer, deletion, and security of and access to genetic data<\/span> and (ii) privacy practices; <\/i><\/a><\/p><\/section>\n\t\t\t\t\t\t

2.<\/span> Information regarding the requirement for express consent<\/span> for the collection, use, and disclosure of genetic data<\/span> and the process for revoking express consent<\/span> pursuant to § 59.1-596<\/a>; <\/i><\/a><\/p><\/section>\n\t\t\t\t\t\t

3.<\/span> Notice that a consumer<\/span>’s deidentified genetic or phenotypic data may be shared with or disclosed to third parties for research purposes in accordance with 45 C.F.R. Part 46; and <\/i><\/a><\/p><\/section>\n\t\t\t\t\t\t

4.<\/span> Information about the process by which a consumer<\/span> may file a complaint alleging a violation of this chapter. <\/i><\/a><\/p><\/section>\n\t\t\t\t\t\t

B.<\/span> Information required to be made available pursuant to subsection A shall be written in plain language and shall be provided to consumers<\/span> together with any genetic testing product provided to consumers<\/span>. Such information shall also be included on any website maintained by the direct-to-consumer<\/span> genetic testing company<\/span> in a manner that is easily accessible by the public. <\/i><\/a><\/p><\/section>","plain_text":" CODE OF VIRGINIA\n\nINFORMATION TO BE MADE AVAILABLE TO CONSUMERS (\u00a7 59.1-595)\n\nA. Every direct-to-consumer genetic testing company shall provide to consumers:\n\n 1. A summary of the company’s (i) policies and procedures related to the\n collection, use, maintenance, retention, disclosure, transfer, deletion, and\n security of and access to genetic data and (ii) privacy practices;\n\n 2. Information regarding the requirement for express consent for the\n collection, use, and disclosure of genetic data and the process for revoking\n express consent pursuant to § 59.1-596;\n\n 3. Notice that a consumer’s deidentified genetic or phenotypic data may\n be shared with or disclosed to third parties for research purposes in\n accordance with 45 C.F.R. Part 46; and\n\n 4. Information about the process by which a consumer may file a complaint\n alleging a violation of this chapter.\n\nB. Information required to be made available pursuant to subsection A shall be\nwritten in plain language and shall be provided to consumers together with any\ngenetic testing product provided to consumers. Such information shall also be\nincluded on any website maintained by the direct-to-consumer genetic testing\ncompany in a manner that is easily accessible by the public.\n\nHISTORY: 2023, c. 526.","edition":{"id":1,"name":"2025","slug":"2025","date_created":"2026-06-21 22:39:22","date_modified":"2026-06-21 22:39:22","current":1,"order_by":1,"last_import":null}}