                                 CODE OF VIRGINIA

RARE DISEASE COUNCIL; PURPOSE (§ 32.1-73.14)

There is hereby created in the executive branch of state government the Rare
Disease Council (the Council) for the purpose of (i) advising the Governor and
the General Assembly on the needs of individuals with rare diseases in the
Commonwealth; (ii) identifying challenges that such individuals face, including
delays in obtaining a diagnosis or the receipt of a misdiagnosis, shortages of
medical specialists who can provide treatment, and lack of access to therapies
and medication used to treat rare diseases; (iii) funding research related to
rare diseases and the development of new treatments for rare diseases; and (iv)
funding for supports for persons with rare diseases in the Commonwealth.

HISTORY: 2021, Sp. Sess. I, c. 303.