                                 CODE OF VIRGINIA

VIRGINIA CENTER ON AGING; VIRGINIA MEMORY PROJECT (§ 23.1-2311.1)

A. There is established within the Virginia Center on Aging the Virginia Memory
Project.

B. The purpose of the Virginia Memory Project shall be to collect and analyze
data on Alzheimer&#8217;s disease, related dementias, and other
neurodegenerative disorders in the Commonwealth, provide responsive assistance
to individuals with Alzheimer&#8217;s disease, related dementias, and other
neurodegenerative disorders by connecting them with relevant service providers,
and assist in the development of public policy and planning relative to
Alzheimer&#8217;s disease, related dementias, and other neurodegenerative
disorders. The Virginia Memory Project shall provide and maintain a central
database of individuals with Alzheimer&#8217;s disease, related dementias, or
other neurodegenerative disorders.

C. The executive director of the Virginia Center on Aging shall also direct the
Virginia Memory Project. The executive director shall establish provisions for:

   1. The collection and evaluation of data regarding the prevalence of
   Alzheimer&#8217;s disease and related disorders in the Commonwealth, including
   who shall report the data to the central database;

   2. The determination of what information shall be maintained in the central
   database and the length of time such data shall be available;

   3. The process for sharing data for policy planning purposes;

   4. The process for disclosing nonidentifying data to support research on
   Alzheimer&#8217;s disease and related disorders;

   5. The methodology by which families and physicians of persons who are
   reported to the central database shall be contacted to gather additional data;
   and

   6. The provision of information to families and physicians about public and
   private resources.

D. The collected data in the Virginia Memory Project shall be confidential, and
all persons to whom the data in the Virginia Memory Project is released shall
maintain patient confidentiality. No publication of information shall be made
that identifies any patient by name.

HISTORY: 2024, c. 330.