                                 CODE OF VIRGINIA

INFORMATION FROM HOSPITALS, CLINICS, CERTAIN LABORATORIES, AND PHYSICIANS
SUPPLIED TO COMMISSIONER; STATEWIDE SICKLE CELL DISEASE REGISTRY (§ 32.1-73.22)

A. Each hospital, clinic, and independent pathology laboratory shall make
available to the Commissioner or his agents information on patients having
sickle cell disease. A physician shall report information on patients having
sickle cell disease unless he has determined that a hospital, clinic, or
in-state pathology laboratory has reported the information. Such information
shall include the name, address, sex, race, diagnosis, trait status, newborn
screening data, and any other pertinent identifying information regarding each
such patient. Each hospital, clinic, independent pathology laboratory, or
physician shall provide other available clinical information as defined by the
Board.

B. From such information the Commissioner shall establish and maintain a
statewide sickle cell disease registry. The purpose of the statewide sickle cell
disease registry shall include:

   1. Determining means of improving the diagnosis and treatment of sickle cell
   disease patients.

   2. Determining the need for and means of providing better long-term, follow-up
   care to sickle cell disease patients.

   3. Conducting epidemiological analyses of the incidence, prevalence, survival,
   and risk factors associated with the occurrence of sickle cell disease in
   Virginia.

   4. Improving rehabilitative programs for sickle cell disease patients.

   5. Assisting in the training of hospital personnel.

   6. Determining other needs of sickle cell disease patients and health
   personnel.

HISTORY: 2024, c. 437.