                                 CODE OF VIRGINIA

NOTIFICATION OF SICKLE CELL DISEASE PATIENTS OF STATEWIDE SICKLE CELL DISEASE
REGISTRY REPORTING (§ 32.1-73.26)

A. Any physician diagnosing sickle cell disease shall, at such time and in such
manner as considered appropriate by such physician, notify each patient whose
name and record abstract is required to be reported to the statewide sickle cell
disease registry pursuant to &#xA7; 32.1-73.22 that personal identifying
information about him has been included in the registry as required by law. Any
physician required to so notify a patient that personal identifying information
about him has been included in the sickle cell disease registry may, when, in
the opinion of the physician, such notice would be injurious to the
patient&#8217;s health or well-being, provide the required notice to the
patient&#8217;s authorized representative or next of kin in lieu of notifying
the patient.

B. Upon request to the statewide sickle cell disease registry, the patient whose
personal identifying information has been submitted to such registry shall have
a right to know the identity of the reporter of his information to such
registry. A patient diagnosed with sickle cell disease may self-report
information to the statewide sickle cell disease registry. A patient diagnosed
with sickle cell disease shall have the right to opt out of having his data
reported to the statewide sickle cell disease registry.

HISTORY: 2024, c. 437.